Required Reading: The Pain Chronicles

Published in 2010, Melanie Thernstrom’s book “The Pain Chronicles” covers the many aspects of pain in near-encyclopedic detail. Despite its staggering range of information  the book manages to connect on a personal level with narratives scattered throughout. None less touching than the author’s personal 12 year struggle with chronic pain.

The book was conceived by the author, who, as a journalist and a pain sufferer wanted to shed light on the topic at large. She proceeded to spend years experimenting, investigating causes, treatments, interviewing patients and observing some of the top pain doctors in the United States.The results are depressing, hopeful, and thought provoking all at the same time.

The book is broken down in 4 basic components: pain as a metaphor, pain as a disease, pain as a narrative and pain as a perception. Each of the four sections is segmented out into mini-chapters; many of which pack the punch of scientific text coupled with poetic eloquence.

Thernstrom takes the reader on a tour of the cultural history of pain, reviews countless scientific studies and gives faces to some of her statistics. She successfully navigates the necessary sensitives of writing on book on pain while managing to not sugar coat. To describe the book as comprehensive is an enormous understatement.

Whether you are chronic pain patient or not the book is highly engaging. The meticulous research and well formed prose provide an excellent backbone, but the true character of the book is revealed in the writing about the people. There are so many thoughts, fears and experiences splashed throughout the pages its difficult to wrap ones head around. Despite the many reasons for hope there are few perfect outcomes and even fewer certainties. As Thernstorn writes: “pain brings out the best or worst in people. . . . We write about pain, but pain rewrites us.”

Posted in Uncategorized | Leave a comment

Acute Vs. Chronic, and some background

If this seems like a simple topic forgive my naivete. But I believe this is a very critical distinction to make and one that I failed to for a long time. This distinction is important because it can define how you are treated by medical providers and  in turn dictate how you perceive it your injury/condition.

Chronic pain/injury/disease is something the progresses slowly, develops over time, and becomes a systemic issue often gathering momentum as it progresses. The cause and effect relationship is generally unclear.

Acute pain/injury/disease is something that has a rapid onset, short duration and often times (but not always) a result of a specific impact or traumatic event to the body. The cause and effect relationship is generally pretty clear.

These are generalizations of course, and there is much more nuance to be had. But for me, getting to these basic classifications more quickly would have gone a long way.

As an 18 year old I was injured playing soccer when I collided with a goalkeeper. To spare you the melodramatic details the end result was a trip to the Emergency Room, a referral to an Orthopaedic Doctor and  a little physical therapy. There were some mumblings about hyperextension, cervicalgia, and contusions but nothing definitive. I was supposed to be fine. Nothing was broken or dislocated and plus I was 18, an athlete and in the prime of my health.

Unfortunately this has not been the case. I write this seven years later with much worse pain than at initial onset and an unclear future. But one thing I see looking backward is a fundamental misunderstanding of chronic vs acute pain.

For years I pursued treatments that were more appropriate for acute problems. I told people that this specific injury was the source of my problems. I saw the same chiropractors and therapists over and over. I wondered why I wasn’t healing. I blamed myself for not healing. I wondered how such an innocuous seeming injury could be so devastating. And I went in circles.

Now maybe I would have either way. But I do think that a considerable amount of time and energy was wasted on the wrong treatments and incorrect methods of thought. I now think of my problem as something that preexisted the “injury” and the “injury” simply gave an opportunity for the problem to manifest. I don’t advocate that everyone run out and demand some type of a diagnosis and throw around somewhat arbitrary terms like “chronic”.  But a clear understanding of an injury or a medical condition is imperative.

My advice? Do a lot of research, don’t accept everything a doctor tells you, advocate for yourself, get multiple opinions, stay positive and most of all listen to your body.

Posted in Uncategorized | Leave a comment

Welcome

Hi, my name is Colin and I suffer from chronic pain.

 

I grew up a competitive soccer player and was injured around the age of 18. I was given anti-inflammatory medication, told to go through physical therapy and I would be fine. Seven years, thousands of dollars and 25+ doctors later I have never been given a concise diagnosis or a cure to the back pain I constantly find myself in. This is a struggle I continue with as of today.

The back pain that I developed out of my injury has run an unpredictable course. At times tolerable at others not, its presence has become part of my life and the ramifications have been severe. After years of doctors visits, medications, treatment programs, therapies and adjustments I am in my mid twenties and still in pain. But I’m not looking for pity, anything but in fact.

Based on firsthand experience I can accurately say that chronic physical pain is one of the worst things anyone can go through. I relate it to torture sanctioned against you by your own body. If you are reading this and relate I’m truly sorry.

Although the pain has remained one thing has changed. I am no longer a victim. I spent man years feeling angry, depressed, and helpless. Reasonable reactions no doubt, but they don’t help. I may find answers for my condition or I may not, but either way life continues. Pain or not I plan to do what I can to get the most out of life and if I can help anyone else along the way. So much the better.

As I mentioned above I’ve pretty well run the gauntlet of medical treatment. I hope to helpful provide information to others who feel adrift in the maze of their treatment. I hope to inspire others to continue fighting. But above anything else I hope to connect with others and share experience.

 

Posted in Uncategorized | Leave a comment